I do not know the relative risk in this setting that appears to be separate from CMT. Avoid processed foods as much as possible. If not caught in its earliest stage, the joints in the foot collapse and the foot eventually becomes deformed. 800.606.2682 Charcot-Marie-Tooth disease (CMT) is the most common inherited neuromuscular condition, affecting approximately 1 in in every 2,500 people. My name is Samantha. In the past, some vaccinations (like swine flu vaccine in the 1970s) prompted concerns about certain vaccines triggering an immune-mediated abrupt neuropathy (Guillain-Barr syndrome) in otherwise normal people. Weight maintenance is also important in order to maximize your ability to move your body pain-free and with as little fatigue as possible. Try eating a diet rich in healthy fats and fiber. The good thing for you is that now, if you get especially tired after doing something taxing, youll allow yourself to get fully rested before doing the next job without punishing yourself by trying to do too much. There were a few scattered suspicions with Tagamet but not Zantac. The program offers adaptive free online classes for everyone! Charcot-Marie-Tooth disease results in smaller, weaker muscles. pineapples: pineapples come with papain and bromelain, i.e. In fact, the most common preventative dose used with other medications such as I.N.H. Along with disc problems and Arthritis in lower back. AcipHex (rabeprazole) is in the same class of drug as Prilosec (omeprazole) and Prevacid (lansoprazole), both of which have very rarely been associated with causing peripheral neuropathy. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Young is a writer with CMT 1A living in Cary, North Carolina. Would like some help from others relating to my problem with C.M.T , food advice to diminish the pain. In the case of multiple physicians working together, the names of diseases can quickly become long. only in hospital or ambulatory care settings, including physicians offices, that provide for continuous availability of resuscitative drugs and equipment and personnel trained in their use. This would apply to any patient. I do not know of any documented case of someones CMT worsening because of birth control pills or HRT. I am over fifty, and feel very down at times. It covers the first half of my journey, a 32,600km cycle from Ireland to Australia. Our articles are resourced from reputable online pages. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Its terrible! Some foods rich in folate include: leafy green vegetables beans legumes nuts breads cereals Dietary sources also influence serotonin levels in your body. However, the risk is likely very small in general, depending on which muscles are injected. If it comes straight from the udder, avoid it. Statins are clearly superior to the older treatments for hyperlipidemia (elevated cholesterol levels), so each treating physician needs to weigh the clear benefits of the drugs against this small risk in CMT patients. The only B-vitamin clearly known to cause neuropathy from excessive use is pyridoxine (B6). I believe there are HRT formulations with lower progesterone content, but someone expert in that area would need to advise you on which formulation is most appropriate and the lowest risk for non-neurologic complications, such as endometrial hyperplasia. I havent seen my neurologist yet to receive instructions. Im trying to do a lot of exercises in the water. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. People with CMT experience fatigue as a result of the extra effort required to . This means cooking from scratch, eating 5-7 servings of fruits or vegetables per day, and incorporating foods like avocados, olives, nuts and cold-water fish into your diet while limiting processed carbohydrates and sugar. Keep up the good work i will definitely read more posts. A mega dose is defined as 10 times the RDA (recommended daily allowance). According to Govindarajan, perhaps the answer to living life richly and fully with CMT includes considering a holistic approach. . Limit buying foods that are high in sodium, fat, sugar, or starch content. A daily multivitamin capsule should not be a problem. Hello Linda, I am 44 and I have been vegan for 15 years. There are no reports of neuropathy and Avastin in association with macular degeneration applications. Actually, they might be right. This is an emerging and exciting new class of drugs used to treat several autoimmune diseases. Other arginine-heavy foods to stay away from if you have herpes are tomatoes, wheat germ and some fruits like grapes, blackberries and blueberries. I have a recumbent bike at home that I ride every day along with other exercises. The CMTA is a 501(C)(3) nonprofit organization, EIN# 22-2480896. After making it regularly for the past week or so, Ive learned a few things. My, My, just typing all this is overwhelming. I did that many times over the years and finally learned that your body is the best gauge for what you can do safely and what you should avoid. Subjects who received the vaccine were half as likely to get shingles (herpes zoster) and much less likely to develop postherpetic neuralgia (PHN), the painful form of neuropathy limited to the region of the shingles. Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT. You're more likely to have acne if your diet is full of foods and drinks like soda, white bread, white rice, and cake. Dietary Dos and Donts for Migraine Sufferers, Shirshasana (Headstand) Versus Inversion Therapy Using Inversion Table, Understanding Joint Pain and Tips to Get Relief Using Home Remedies, Erectile Dysfunction: Does Opioid Cause ED, Libido: Opioid Induced Female Sexual Dysfunction. This can include straining weakened muscles and joints further and making it more difficult to move around, resulting in further weight gain. We recommend a heart-healthy version of scrambled eggs 1 whole egg and 1 egg white, scrambled together with oz of lowfat cheese. I know of no special concerns with Versed and CMT unless it is used for an extended period of time, unlike the brief exposure for anesthesia before surgery. mashed.com - Jennifer Goldsmith. Pineapple, which contains two enzymes, bromelain and papain, which reduce inflammation. Thanks, Oscar. Indeed, obesity or overweight condition results in additional issues, which make the Charcot Marie Tooth symptoms worse. has been associated with respiratory depression and respiratory arrest. Choosing a variety of protein sources such as cold-water fish, poultry, grass-fed red meats and beans is important to get a variety of nutrients. The two mentioned are the only ones reported in the literature, but you are correct to observe that there is no reason why the others should not have a similar risk even though the association has not been noted. Some snack foods and store-bought packaged toddler foods are high in salt. French fries are loaded with saturated fat, sodium, carbohydrates, and calories. The genetic defects in most demyelinating types of CMT are known, as are the encoded proteins and their functions. Constant Maturity Treasury (CMT). The potential benefit may simply be adding more muscle and not improved nerve function. Its a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research. This article may contains scientific references. Find an exercise program that you enjoy, whether it be biking or swimming or the gym. There are no specific supplements to take for fatigue. There were a few reports of sudden neuropathy with St. Johns Wort in the late 90s, but very little since then. The related drug lansoprazole was reported in 2005 to cause neuropathy in one patient. [ 1, 2] These disorders are also known as hereditary motor and sensory neuropathies (HMSNs); they are distinct from hereditary sensory neuropathies (HSNs) and hereditary motor . 1715z-16 allowed HUD to insure ARMs that have fixed interest rates for 3 years or more and are not subject to interest rate caps if the interest rate remains fixed for more than 3 years. The damage caused by the disease results in muscle weakness and loss of sensation, among other symptoms. However, for an unlucky few, even the small amount of quinine in tonic water can cause thrombocytopenia. The symptoms described are well known and common side effects. A diet rich in folate may also contribute to increased serotonin levels. Charcot Marie Tooth is a type of inherited and progressive disorder, which characterizes damages to the patients peripheral nerves. There would seem to be no problem with the topical application of Mycolog II cream. Duloxetine is an anti-depressant and not a benzodiazepine, but the drug has been studied to treat anxiety as well. Other drugs on the medication list have less clear associations with CMT and excessive toxicity. Dont give up! The risk is minimal if the drugs are indicated. Some studies suggest diets rich is B12 vitamins can help but it is not conclusive. Considering this fact, we should say that green tea is applicable for CMT patients, who have weak body muscles. There are 254 drug interactions with CMT (choline salicylate / magnesium salicylate) CMT (choline salicylate / magnesium salicylate) alcohol/food interactions. It is hard to.chang. Unfortunately, none of these medications work all the time for all patients; some work for some patients, others work for other patients. The agent has not been studied in CMT, to our knowledge, and it is important to know that the mechanisms of nerve injury differ between diabetes and CMT. We just came to know about CMT in our son. The remainder of the medications listed below present varying degrees of potential risk for worsening CMT neuropathy. Having a neuromuscular disorder like Charcot-Marie-Marie-Tooth syndrome can pose some unique challenges of weight loss, especially when designing an exercise and diet routine. Consultation with a physical therapist is best. But fruited yogurt is another story. Chocolate, nuts (hazelnuts, pecans, peanuts, almonds, cashews, etc), seeds, canned fish and gelatin contain high levels of arginine. The only thing to be aware of and to tell the doctors about is that you will not recover from anesthesia as quickly as a person without CMT, so they need to take their time in moving you. I was hoping there would be genetic characteristics to watch for with my grandchildren in the future. Hi, The opinions expressed in this column are not those of, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to. The risk for migraine Botox in CMT is minimal. This site is strictly a news and information website about the disease. One slice contains 27 calories, 0 grams of fat, and 7 grams of carbs. Young Lee However, they also are high-purine foods. It has many uses including blood pressure control, heart disease, migraine prevention, and suppressing essential tremors. Garlic and Root Vegetables Garlic, onions, ginger and turmeric have anti-inflammatory properties. Be good to yourself and try not to stress. I also tried making turmeric tonic. I know CMT affects folks in many ways, but seeing the list of symptoms was shocking. It appears that everyone who developed PHN actually had true shingles, despite the vaccine and not because of a vaccine reaction. Ultimate wishlist of CMT-friendly products on Amazon to make life with CMT easier. The treating MD should have mentioned these possibilities. The drug is on the negligible list only because of some very old and unconvincing reports from the 1970s. "Choosing foods that keep your blood sugar in a safer range, as well as avoiding the ones that don't, helps reduce your risk of your condition progressing and developing complications." So which foods are fine to eat freely, and which should you avoid? Certainly, the underlying problems of CMT, Charcot joint, arthritis and spine disease must also be considered by your physician. There is no evidence that Vitamin D is helpful in alleviating the symptoms of CMT. Recent studies have confirmed what five year olds have been telling us for years chocolate milk is a health drink. To our knowledge, people with CMT are at no additional risk in having Lasik or other corrective procedures. Supporting patients and families with critical information to improve quality of life, and funding research that will lead to treatments and cures. Save my name, email, and website in this browser for the next time I comment. The foods that you eat need to do more than just fill you up. Nuclear medicines and radiation treatments used against cancers are in a different category, but the drugs generally used in colonoscopy are light anesthetics. Another common issue for children that they typically outgrow, milk can trigger eczema for people who are otherwise are not lactose intolerant. At this point, there is no diet that has been proven to show improvement in CMT symptoms or disease process. I dont have swelling in my legs since cutting out dairy, I dont have pain anymore, I have more energy and I just feel so much better in general. My brother loves chia pudding but I had never made it. One of the challenges facing people with CMT is fact that CMT muscles can take longer to recover from exercise. sugar should be consumed in moderation. 2. She has been to Neurologist, orthopediac surgeon Physio and ot and have some guidance but the disease is progressing more rapidly than they thought. But foods that are high in B 12 should be avoided mostly. The hammertoes seen in CMT are usually as a result of muscle imbalance and structural misalignment. There are many substances that produce damage to normal peripheral nerves, including heavy metals such as lead, arsenic, mercury and thallium, and drugs such as vincristine, thalidomide and pyridoxine. Thrombocytopenia is a drop in the bloods platelet count that can lead to internal and external bleeding as well as a related condition that can cause permanent kidney damage. L-histidine is an essential amino acid that is supplied in adequate amounts in any good diet. I am not aware of attempts to treat otherwise normal CMT patients successfully with B12, but it has been tried in diabetic neuropathy without clear benefit in patients with normal vitamin levels. There is no neurological reason for that symptom. Food provides energy for all cells in the body, and the types and amounts of certain foods can influence the way your body uses that energy. The only agent in that group that has been questioned about a detrimental effect on CMT is Paxil (paroxetine). 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